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VERSION:2.0
PRODID:icalendar-ruby
CALSCALE:GREGORIAN
X-WR-CALNAME:Rhett's Superhero Stomp Out A-T 5K
X-WR-TIMEZONE:Eastern Time (US & Canada)
BEGIN:VEVENT
DTSTAMP:20260818T203615Z
UID:tag:localist.com\,2008:EventInstance_43149232171384
DTSTART:20230624T120000Z
DTEND:20230624T190000Z
DESCRIPTION:A-T Children’s Project to Host 2nd Annual\n\nRhett’s Stomp 
 Out A-T 5K!\n\n  \n\n\n\nRhett\, Age 5 has A-T a rare genetic disease\n\nS
 aturday\, June 24\, 2023 at Mylan Park\, Morgantown\, WV.\n\n \n\nMORGANTO
 WN\, WEST VIRGINIA\, Saturday\, June 24\, 2023– For the second year in a
  row\, Mylan Park will be partnering with the Johnson family and the A-T C
 hildren’s Project to host a 5K fundraiser in honor of Rhett Johnson. The
  event will benefit the A-T Children’s Project (A-TCP)\, an organization
  dedicated to finding life-improving therapies and a cure for ataxia-telan
 giectasia (A-T)\, a rare\, fatal genetic disease that affects children. Rh
 ett has been diagnosed with A-T and the Johnson family hosts Rhett’s Sto
 mp Out A-T 5K to raise money for his rare disease.\n\n \n\nRhett’s A-T j
 ourney started when he was around the age of two. Up until that point he h
 ad been growing normally and meeting his developmental milestones. Soon af
 ter\, Rhett’s parents\, Megan and Zach\, then started noticing that he w
 as more “wobbly” and “slobbery” than the other kids his age. Two y
 ears later with a DNA test\, Rhett was diagnosed with A-T. Their biggest f
 ears had come true that they are dealing with something that has no cure\,
  no treatment\, and is progressive.\n\n \n\nAfter receiving this heartbrea
 king diagnosis\, the Johnson family became connected with the A-T Children
 ’s Project. Community is everything and the A-TCP has set them up with o
 thers in the United States and around the world that share their same stor
 y. Because the A-TCP is working vigorously with researchers around the glo
 be to find a cure\, the Johnson family felt hope.\n\n \n\nDue to the fundr
 aising efforts of the Johnson family and families like them all over the U
 S\, research has been ongoing. The A-TCP’s research has led to the devel
 opment of treatments for A-T symptoms\, including feeding tubes and immune
  therapy\, as well as gaining a deeper biological understanding of how a m
 utated A-T gene causes many severe problems. The A-TCP is planning more cl
 inical trials to find therapies to treat A-T and slow its relentless progr
 ession.\n\n \n\nLast year\, with family\, friends and local support\, Rhet
 t’s Stomp Out A-T 5K raised over $38\,592! The Johnson family hopes to e
 xceed this amount this year and reach their goal of raising $40\,000. The 
 event will begin at 8:00 AM at Mylan Park.\n\nThere will be vendors\, fun 
 kids’ activities\, superhero characters\, a silent auction and more. The
  Johnson family hopes to see you there and thanks you for your support!\n\
 n \n\nFor more information or to donate\, please contact Megan Johnson at 
 megan.pritt.wv@gmail.com or visit atcp.org/rhetts5k.\n\n \n\nAbout the A-T
  Children’s Project\n\nThe nonprofit A-T Children's Project partners wit
 h academic and industry investigators worldwide - organizing and supportin
 g innovative research\, conferences\, clinical teams\, data platforms and 
 biomarkers - to optimize disease management strategies\, develop new treat
 ments and find a cure. To learn more about the A-T Children’s Project\, 
 visit www.atcp.org.\n\n \n\nAbout ataxia-telangiectasia (A-T)\n\nA-T is a 
 progressive\, degenerative disease that affects a startling variety of bod
 y systems. Children with A-T appear normal at birth\, but the early signs 
 of the disease usually appear during the second year of life. A-T causes t
 he relentless loss of muscle control\, usually making children dependent o
 n wheelchairs by age 10 and making it difficult for them to read\, speak a
 nd eat. Children with A-T also have a strikingly high risk of cancer. Alth
 ough considered a rare “orphan” disease\, A-T may actually be much mor
 e common than we know\, since many children with A-T\, particularly those 
 who die at a young age\, are never properly diagnosed. There currently is 
 no cure for A-T and no way to slow the progression of the disease. Researc
 h on A-T may help many more common diseases\, such as cancer\, Alzheimer
 ’s disease and Parkinson’s disease. To learn more about A-T\, visit ww
 w.atcp.org.
GEO:39.645065;-80.045479
LOCATION:Track and Field Complex\, Mylan Park
SUMMARY:Rhett's Superhero Stomp Out A-T 5K
URL;VALUE=URI:https://cal.wvu.edu/event/rhetts_superhero_stomp_out_a-t_5k
CATEGORIES:Fundraisers
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